Estado de la cuestión de los estudios cualitativos sobre grupos de apoyo de afectados por cáncer de próstata
Número
Secció
Articles
Paraules clau:
cáncer de próstata, grupos de apoyo, Hombres, metodología cualitativa, revisión
Publicat
2024-11-28
Resum
Esta revisión exploratoria sintetiza estudios cualitativos sobre las experiencias de pacientes con cáncer de próstata (en adelante, CaP), que participan en grupos de apoyo de cáncer de próstata. Este trabajo revisa los estudios cualitativos que se centraron exclusivamente en pacientes con CaP —para ello se utilizó la herramienta de Critical Appraisal Skills Programme (CASP)—, sintetiza los datos y averigua los temas generales de estos estudios. La búsqueda dio lugar a 3.534 estudios, de los cuales se seleccionaron 34 estudios cualitativos para la síntesis. Se identificaron seis temas: (1) Grupos de apoyo, (2) Diagnóstico/Tratamiento, (3) Experiencia vivida, (4) Información, (5) Cuidados y (6) Masculinidad. El entorno del grupo fomentó diálogos dinámicos y sinceros sobre la experiencia del cáncer de próstata, lo que generó camaradería, actitudes altruistas y apoyo mutuo. La variedad de opciones de grupos de apoyo —en línea, cara a cara, centrados en actividades— proporcionó una experiencia única y permitió a los hombres comprometerse y participar según su disponibilidad y necesidades. Se concluye que los grupos de apoyo al cáncer de próstata (GACP) proporcionan un apoyo inestimable que no está disponible durante las consultas clínicas. El intercambio de información contribuyó a aumentar los conocimientos sobre la próstata y el cáncer de próstata, lo que potenció la toma de decisiones sobre las opciones de tratamiento y los resultados. Existe una preocupación creciente entre los hombres que están llegando al final del tratamiento del cáncer de próstata y entre los grupos de colectivos marginados por la falta de atención a sus necesidades asistenciales específicas.
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Connell, R. (2014) "The study of masculinities" Qualitative Research Journal, 14(1): 5–15. 10.1108/QRJ-03-2014-0006
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Dickerson, S. S., Reinhart, A., Boemhke, M. y Akhu-Zaheya, L. (2011) "Cancer as a Problem to Be Solved" CIN: Computers, Informatics, Nursing, 29(7): 388–395. 10.1097/NCN.0b013e3181f9ddb1
Dieperink, K. B., Wagner, L., Hansen, S. y Hansen, O. (2013) "Embracing life after prostate cancer. A male perspective on treatment and rehabilitation" European Journal of Cancer Care, 22(4): 549–558. 10.1111/ecc.12061
Ekúndayò, O., Tataw, D. y Qobadi, M. (2015) "Predictors and contextual factors in prostate cancer screening service utilization among African-American men in an urban sample in Mississippi, USA" International Journal of Health Promotion and Education, 53(4): 180–191. 10.1080/14635240.2014.987402
Ettridge, K. A., Bowden, J. A., Chambers, S. K., Smith, D. P., Murphy, M., Evans, S. M., Roder, D. y Miller, C. L. (2018) “‘Prostate cancer is far more hidden…”: Perceptions of stigma, social isolation and help-seeking among men with prostate cancer" European Journal of Cancer Care, 27(2): e12790. 10.1111/ecc.12790
Evans, J., Frank, B., Oliffe, J. L. y Gregory, D. (2011) "Health, Illness, Men and Masculinities (HIMM): A theoretical framework for understanding men and their health" Journal of Men’s Health, 8(1): 7–15. 10.1016/j.jomh.2010.09.227
Farrington, A. P., Wilson, G., Limbrick, H. y Swainston, K. (2020) "The lived experience of adjustment to prostate cancer" Psychology of Men & Masculinities, 21(3): 369–379. 10.1037/men0000237
Fergus, K. D., Gray, R. E. y Fitch, M. I. (2002) "Sexual dysfunction and the preservation of manhood: Experiences of men with prostate cancer" Journal of Health Psychology, 7(3): 303–316. 10.1177/1359105302007003223
Gray, R. E., Fitch, M., Davis, C. y Phillips, C. (1997) "Interviews with men with Prostate Cancer about their Self-Help Group Experience" Journal of Palliative Care, 13(1): 15–21. 10.1177/082585979701300104
Green, R. (2020) "The Forms and Uses of Acquired Prostate Cancer Expertise Among Prostate Cancer Survivors" Sociological Research Online, 26(1): 60–74. 10.1177/1360780420905840
Green, R. (2021) "Maintaining masculinity: Moral positioning when accounting for prostate cancer illness" Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 25(4): 399–416. 10.1177/1363459319851555
Green, R. (2023) "Experiences and management of urinary incontinence following treatment for prostate cancer: Disrupted embodied practices and adapting to maintain masculinity" Health (United Kingdom), 28(4):489–506. 10.1177/13634593231185266
Hoyt, M. A., Frost, D. M., Cohn, E., Millar, B. M., Diefenbach, M. A. y Revenson, T. A. (2020) "Gay men’s experiences with prostate cancer: Implications for future research" Journal of Health Psychology, 25(3): 298–310. 10.1177/1359105317711491
Imm, K. R., Williams, F., Housten, A. J., Colditz, G. A., Drake, B. F., Gilbert, K. L. y Yang, L. (2017) "African American prostate cancer survivorship: Exploring the role of social support in quality of life after radical prostatectomy" Journal of Psychosocial Oncology, 35(4): 409–423. 10.1080/07347332.2017.1294641
Jones, R. A., Wenzel, J., Hinton, I., Cary, M., Jones, N. R., Krumm, S. y Ford, J. G. (2011) "Exploring cancer support needs for older African-American men with prostate cancer" Supportive Care in Cancer, 19(9): 1411–1419. 10.1007/s00520-010-0967-x
Kedrowski, K. M. y Sarow, M. S. (2007) Cancer Activism: Gender, Media, and Public Policy. United State of America: University of Illinois Press.
Kim, E. H. y Andriole, G. L. (2015) "Prostate-specific antigen-based screening: Controversy and guidelines" BMC Medicine, 13(1): 61. 10.1186/s12916-015-0296-5
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Com citar
Estado de la cuestión de los estudios cualitativos sobre grupos de apoyo de afectados por cáncer de próstata . (2024). Arxiu d’Etnografia De Catalunya, 27, 69-98. https://doi.org/10.17345/aec27.3980